PUBLICATIONS, RESOURCES & NEWS
Publication
Work Package 2
Methodological challenges surrounding QALY estimation for paediatric economic evaluation
Systematic Review of the Psychometric Performance of Generic Childhood Multi-attribute Utility Instruments
Psychometric Performance of Generic Childhood Multi-Attribute Utility Instruments in Preterm and Low Birthweight Populations
Publication
Work Package 3
Reliability, acceptability, validity and responsiveness of the CHU9D and PedsQL in the measurement of quality of life in children and adolescents with overweight and obesity
Psychometric Evaluation of the PedsQL GCS and CHU9D in Australian Children and Adolescents with Common Chronic Health Conditions
Longitudinal associations between socioeconomic position and overall health of children with chronic kidney disease and their carers
Psychometric Evaluation of the Proxy-Reported Pediatric Quality of Life Inventory Generic Core Scales Across the Childhood Lifespan in Australian Children and Adolescents With Specified Health Conditions
Publication
Work Package 5
Baseline characteristics of participants in the NAVKIDS trial: a patient navigator program in children with chronic kidney disease
NAVKIDS2 trial: a multi-centre, waitlisted randomised controlled trial of a patient navigator intervention in children with chronic kidney disease — statistical analysis plan and update to the protocol
Longitudinal assessment of the health-related quality of life of children and adolescents with chronic kidney disease
A Within-Trial Economic Evaluation of a Patient Navigator Program in Children With CKD
Publication
Work Package 9
Making recommendations to subsidize new health technologies in Australia: A qualitative study of decision-makers’ perspectives on committee processes
“Blanket rules just don’t work”: Qualitative exploration of the relative value of child and adult quality-adjusted life year (QALY) gains for health technology assessment
Getting fairer over time? Assessing changes in health technology funding processes using the accountability for reasonableness (A4R) framework
NEWS
TORCH DISSEMINATION WORKSHOP – AUGUST 28, 2024
On August 28, 2024, the TORCH team held a successful Policy Focused Dissemination Workshop at The National Portrait Gallery in Canberra. This event aimed to highlight the team’s key findings to date, fostering an environment for knowledge exchange among various stakeholders.
The workshop brought together researchers, policymakers, and end users, facilitating discussions around the research outcomes and innovative concepts. Participants engaged in meaningful dialogue, enhancing collaboration and understanding of the research implications.
Overall, the day was both informative and interactive, providing valuable insights while encouraging networking among attendees. The event underscored the importance of collaboration in advancing policy and research initiatives.

USEFUL LINKS
USEFUL LINKS
Translating Early Prevention of Obesity in Childhood
