PUBLICATIONS, RESOURCES & NEWS

Publication

Work Package 1

Systematic Review of Conceptual, Age, Measurement and Valuation Considerations for Generic Multidimensional Childhood Patient-Reported Outcome Measures

Publication

Work Package 2

Methodological challenges surrounding QALY estimation for paediatric economic evaluation

Systematic Review of the Psychometric Performance of Generic Childhood Multi-attribute Utility Instruments

Psychometric Performance of Generic Childhood Multi-Attribute Utility Instruments in Preterm and Low Birthweight Populations

Publication

Work Package 3

Reliability, acceptability, validity and responsiveness of the CHU9D and PedsQL in the measurement of quality of life in children and adolescents with overweight and obesity

Psychometric Evaluation of the PedsQL GCS and CHU9D in Australian Children and Adolescents with Common Chronic Health Conditions

Longitudinal associations between socioeconomic position and overall health of children with chronic kidney disease and their carers

Publication

Work Package 4

A Psychometric Investigation of Health-Related Quality of Life Measures in a Paediatric Neurodevelopment Assessment Service: Reliability and Concurrent Validity of the PEDS-QL, CHU-9D and the EQ-5DY

Publication

Work Package 5

Baseline characteristics of participants in the NAVKIDS trial: a patient navigator program in children with chronic kidney disease

NAVKIDS2 trial: a multi-centre, waitlisted randomised controlled trial of a patient navigator intervention in children with chronic kidney disease — statistical analysis plan and update to the protocol

Longitudinal assessment of the health-related quality of life of children and adolescents with chronic kidney disease

Publication

Work Package 6

Preference Elicitation Techniques Used in Valuing Children’s Health-Related Quality-of-Life: A Systematic Review

The RETRIEVE checklist for studies reporting the elicitation of stated preferences for child health related quality of life

Publication

Work Package 8

Systematic Review of the Relative Social Value of Child and Adult Health

Publication

Work Package 9

Making recommendations to subsidize new health technologies in Australia: A qualitative study of decision-makers’ perspectives on committee processes

All Publications

All TORCH Publications

NEWS

NEWSLETTER

TORCH DISSEMINATION WORKSHOP – AUGUST 28, 2024

On August 28, 2024, the TORCH team held a successful Policy Focused Dissemination Workshop at The National Portrait Gallery in Canberra. This event aimed to highlight the team’s key findings to date, fostering an environment for knowledge exchange among various stakeholders.

The workshop brought together researchers, policymakers, and end users, facilitating discussions around the research outcomes and innovative concepts. Participants engaged in meaningful dialogue, enhancing collaboration and understanding of the research implications.

Overall, the day was both informative and interactive, providing valuable insights while encouraging networking among attendees. The event underscored the importance of collaboration in advancing policy and research initiatives.

TORCH Team

USEFUL LINKS

USEFUL LINKS

EPOCH Translate

Translating Early Prevention of Obesity in Childhood